Creative Sibling Network
Creative Siblings Network is an arts project bringing together 12 adults living across Ireland, all of whom grew up with a sibling with a disability, additional needs or a chronic illness.
Their newly launched publication of illustrated poems, together we built this nest, explores the unique and complex experiences of people who grew up with a sibling with a disability or chronic illness.
The project was initiated by artist Tess Leak, who wanted to connect with other adults like herself who grew up with a sibling with a disability, so she began researching existing networks. She found that organisations in Ireland largely focused on supporting the adolescent brothers and sisters of children with disabilities, leaving a gap for adults.
Informed by her background in arts participation (working across visual arts, poetry and music), Tess developed the Creative Siblings Network to foster connection, offer support and harness creativity as a compassionate force.
“Whilst each of our experiences are unique, we share a depth of both love and concern for our siblings, especially as we get older, facing uncertainty and shifting responsibilities. Many of us also now work, in various ways, in the area of disability and inclusion.” — Tess Leak
The project is also inspired by research from Imogen Hanvey on the experiences of growing up with a disabled or chronically ill sibling, often referred to as “glass children” — those whose own needs for support and connection can be overlooked. Hanvey collaborated on the project and became a member of the network.
“It comes down to a deeply human and simple need – to feel seen and heard, without caveat or explanation, and to be able to spend time with those who have walked the same path.” — Imogen Hanvey
After connecting online, Tess brought the group together for a weekend in summer 2025 at The Centre of Excellence for Climate Action and Sustainability (CECAS) in West Cork. There, participants created poetry and artwork together in a shared, reflective space.
Artist Becky Hatchett supported Tess in co-designing and co-facilitating the weekend, and later designed the publication. Reflecting on her role, she notes:
“It was an honour to be invited into the process alongside Tess — I don’t share the lived experience of being a sibling, so I was conscious of entering such an intimate and sensitive space. At first I wondered if that might be a barrier, but it became clear that holding and witnessing those experiences was a valuable role. It was a deeply meaningful experience for me, and one I feel grateful to have been trusted with.”— Becky Hatchett
The publication is the result of these shared experiences, conversations and creative processes.
“Before this weekend I never truly knew how lonely I was in being a sibling and having no one to speak to about being one. This experience has made me feel I can carry and imagine others in the same situation, their strength will flow through me when I find things difficult.” — Creative Siblings Network member
If you would like a copy of the book, or to find out more about the project, please contact Tess Leak: tessleak@yahoo.com